Rare Patient Voice, LLC

Based in the US, Rare Patient Voice, LLC is a company that connects patients with rare diseases to researchers and healthcare providers, facilitating insights that enhance medical products and services for improved patient care. Rare Patient Voice, LLC, founded in 2013, operates from Towson, US, focusing on empowering patients with rare diseases to share their experiences with researchers and healthcare providers. The company has undergone no significant pivots and operates independently without reported subsidiaries. The firm has secured one deal, with its most recent transaction occurring on February 3, 2026, when it was acquired by Konovo, a portfolio company of Frazier Healthcare Partners and Saroras Private Capital.

Rare Patient Voice (RPV) offers a platform that empowers patients and caregivers with rare diseases to voice their opinions through surveys and interviews. The primary service involves connecting these individuals with researchers, pharmaceutical companies, and healthcare providers to improve medical products and services. RPV facilitates this by providing study opportunities that allow participants to share their experiences and insights, ultimately aiming to enhance disease understanding and treatment options. The company serves a diverse client base, including market research firms and biotechnology companies, primarily across the United States and Canada.

RPV's offerings are designed to engage over 200,000 registered patients and caregivers, creating a comprehensive database that supports various research initiatives in the rare disease sector. Revenue for Rare Patient Voice is generated through partnerships with researchers and organizations seeking patient insights and feedback on their products and services. The transactional structure is primarily B2B, with RPV providing recruitment and engagement services for clinical trials and market research studies. Clients may pay for access to specific patient panels or for conducting surveys, with pricing models typically based on the scale and complexity of the research project.

RPV's flagship service revolves around its patient engagement platform, which not only aids in recruitment but also ensures the quality and reliability of patient data. The firm maintains a streamlined approach to transactions, facilitating quick and efficient interactions between clients and participants, thereby enhancing the overall research process for its clients. Following its acquisition on February 3, 2026, by Konovo, Rare Patient Voice will focus on enhancing its healthcare research solutions. This acquisition aims to accelerate the next phase of growth, allowing the firm to explore new product offerings and expand its reach within the healthcare landscape.

Specific details on new product launches are yet to be disclosed, but the integration with Konovo is expected to facilitate entry into additional markets and geographic regions as part of their growth strategy.